Random musings, thoughts, ideas from me...
hoping a glimpse into my world can help your world
& at the very least it may help me!


Showing posts with label faith. Show all posts
Showing posts with label faith. Show all posts

Saturday, July 30, 2011

The Reeves' moldy update...ugghhh!

In advance (if you are interested), thank you for taking the time to read this, it means the world to us to have your support and we know this is a hard subject to understand (especially if you are not directly affected!)  In all actuality, it is new even to the medical community.  As in most things though, we are becoming VERY educated.  We are by no means simpletons, nor are we naive.  We are readers, researchers and since we are directly affected, it really matters to us.


Leviticus 14:45 "A house desecrated by mildew, mold, or fungus would be a defiled place to live in, so drastic measures had to be taken."
 

A rather QUICK explanation/update on the latest greatest Reeves' family Adventure:

We moved back into our town-home about 2 months or 8 weeks ago. We used a special cleaner called Thieves on EVERYTHING in the house, we mopped, we HEPA vacuumed the whole house, we repainted the entire house with allergy-free/toxic-free paint, we wiped down walls, bathrooms, shelves, beds...you name it. We then did this crazy thing that an Author/Environmental Hygienist recommended as a last ditch effort (remember we had already spent THOUSANDS having the home professionally re-mediated of the MILLIONS of mold spores/fiberglass etc found in our town home), we taped off every A/C vent in the home but one, we used dryer duct work to vent that one duct out our Bedroom window and attempted to "flush" out the A/C system. We had previously left the A/C off for weeks prior to this, and yes, it was a wee bit hot in here (80-90 degrees.)  We tried to spend the night away or days away as often as we could, just hoping the less we were here the less sick we might get IF we were going to get sick again. We truly HOPED we had done enough and would be safe. 

However, in the last three weeks we have all stayed here 'full-time'.  Here are some of the things that have slowly happened: My nose has begun to run like a faucet every morning and then throughout the day. My fingers itch. My hormones have gone wacky (ask Ray:)).  My 'itchy/sore' ears have come back (a main sign many w/fungal issues have).  Bella's joint pain has come back.  Ava is now limping and favoring one leg.  Some of Levi's autistic quirky symptoms are coming back (much of autism is a result of toxic/fungal over growth, etc...).  Kaitlyn's eczema is trying to come back.  While none of these alone are that big of a deal, HOWEVER; together they were unfortunately showing me ever so slowly...we have a problem. The final straw was last week. We all caught a small head cold (no biggie), but instead of getting well (like the normal folk) my kids got worse, some way worse and within 4 days Levi's croupy-cough changed to the violent coughing fits (where he pukes after-wards) had come back with a vengeance. This past week he has been diagnosed with a major asthma flare-up, double ear infection AND double sinus (mold) infections. *If you check out Mayo's study you will see MOST sinus infections are FUNGAL!

Here is the bottom line for us: this town-home is not worth our children's lives!

We thought we could try to live here while the legal-battle goes on and while we remediated our home, alas, we cannot!  We have a peace that we have done all we can do here and even tho' we LOVE this town home it is just not worth the price we may be paying with our health and/or lives.

Wanted to send out a quick picture for those of you who have asked questions and/or do not understand the seriousness of this issue.

We all know kids who have peanut allergies (the life threatening kind.)  You know that the parents have to go to great lengths to ensure there is not so much as a trace of peanut in their life. They have been told, 'Hey now that your kid had this reaction, future ones can kill them'. They carry epi-pens, they read labels voraciously, they get letters sent out to their kid's schools that there can be no more PB & J sandwiches, crackers, etc... at school. They can't even eat things that have been made in a factory where peanuts were stored, processed, etc...  Being in the same room with someone who has had a Reeces PB cup is all it may take to kill them!  The same is true for people with Bee-stings, reactions to penicillin, etc...

Our bodies are fearfully and wonderfully made and they have the amazing ability to recognize the enemy. Well, in our case the enemy appears to be Molds, fiberglass and now potential Chemicals.  I'm sure you've heard of MCS - or Multiple Chemical Sensitivity, people are actually getting Disability for this!  So, for us, just replace the word 'Peanuts' with the above enemies.  Another thing our bodies can do is 'recognize' a place that has made us sick before. It's crazy! ....

So, for us as we have lived back here this time we have been slowly getting sick...until our immune systems were lowered by the cold and BAM it sent our bodies, especially Levi's, straight back to where it was at the height of our sickness last year.  This is the SCARY part to us: Levi didn't have to get sick 6 or 7 times to end up ER bound, he got sick once!!!  We may never know what exactly is in this house we are hyper-sensitive to, we believe it is the A/C system being contaminated and without basically stripping this house down to nothing and rebuilding...we are NOT going to get it clean. (OH, and they haven't even checked behind our back walls yet where the moisture readings are ABOVE the safe limit. And on and on, the craziness goes!)

PLEASE know this as you hear about our story: there is NOTHING fun about this, we aren't making this choice to just have a lil excitement, we do not like our life being in constant turmoil, we do not thrive on this! It hurts my heart as the mom to be faced with this AGAIN. I do not enjoy lying awake  at night wondering if 'that coughing fit' was Levi's last (as in he died).  I know Ray is considering/praying about moving us to Arizona, where the climate is dry. THIS is not an easy situation to be in. And it will now haunt us forever. We may have to rent 7 different homes before we find one we can safely live in. Oh and as far as moving out right now.  We don't actually have the funds to do that.  Ryland has sucked all of our savings and credit down the drain this past year. So, when I say we need to move, I mean...we need to move, but God will have to provide the way! 

Ray is excited about being in that place of total dependency on God! I am having break-downs every few hours, but still trust my God!

Please take a moment to read these excerpts:
"Once the patient has become hypersensitive to the mold in their environment, they have also become overly reactive to all molds in their life including those they breathe elsewhere, those they eat and those that may be colonizing their tissues. Relief of symptoms can only come with a significant reduction in exposure including a mold free diet , avoidance of mold-ridden environments and treatment of mold colonization.  Some mold colonizations are well known, such as athlete's foot, vaginal yeast infections, ringworm, excessive dandruff, toenail fungus, etc. But molds are opportunistic and can become established on any tissue that has been previously damaged. This would include the sinuses of a patient who has had a sinus infection, the lungs of a patient with asthma, the nose of a patient with nasal congestion and the gastrointestinal tract of patients who have had chronic indigestion or abdominal discomfort. The patients' healthy, reactive immune system can prevent the mold from invading surrounding tissues and causing infection. However, it is not able to remove the mold from the mucosal or skin surfaces. The colonization continues, the patient continues to form immune complexes with the mold antigens, the overload continues, and the patient grows sicker."

And...

"Therapy is based on avoidance. The contaminated environment must be remediated or abandoned, a mold-free diet is very helpful, and colonization must be eliminated by the appropriate use of antifungals. The most common colonization sites are the nose, nasopharynx and esophagus."


Thanks again, we are working through this with the Lord's help. Covet your prayers...



Friday, April 8, 2011

Here we go again..literally!

So..as of last night we have decided to take yet another 'break' from this lovely town-home. Here is the sorta kinda why in the world we are doing this AGAIN story....

For those who don't know, don't understand, and prayerfully haven't experienced it yet...your home can kill ya! And if it doesn't kill you, at the very least it can make you miserable. (See prior posts for more info on what has happened to us) We know that something in this home was/might still be/may always be making us sick. We moved out last fall with just the clothes on our backs. By the time we walked away Levi was coughing and puking nightly. We all coughed until we fell asleep exhausted. Joint pains. Miscarriages. Rashes..and so on.  THIS is WHAT your HOME can do to you...fun stuff! Do a quick google search on Sick House Syndrome, Sick Building Syndrome, Mold Toxicity, Formaldehyde Poisoning and so on...creepy, crazy, scary stuff!

At the beginning of this year we moved home..after LOTS of work/remediation/discarding items etc etc. We had high hopes that this was the right thing to do... again, more on that in my older post. And so...we began to get sick again. We were advised to shut down the A/C system. Not such a big deal a few weeks ago, now we are sitting here with the thermostat hovering around 84-87 and high humidity. Grrrrrrr, I am not fan of sweating all the time, even if I am not actually even doing anything other than breathing. (said in my best Junie B Jones voice) And not sure if there is a link or not but the hotter it gets the worse my kiddos sleep. I am also not a fan of sleep deprivation ;)

So now the Insurance company is back involved, we've had several more inspections in the last two weeks and just recently been advised to move out until the situation is resolved. Sounds simple, but in theory IF we are now hyper sensitive to Mold and many chemicals... 'just moving out' isn't so easy. We will have to stay somewhere that does not have water issues or chemical issues and so on.... Right now I get sick in the shampoo aisle or in stores with lots of fluorescent lights and so on. And financially it's not so easy. (Insurance and builder refuse to help until it is proven that they are at fault) We are a one income family, still digging our way out of a failed ministry (coffee shop) from almost 5 years ago, and trying to walk out our faith by allowing Him to control His money. (He being God) ...So, just up and leaving is a huge decision..we've wrestled with it for a while and only after the Lord connected us with our newest friends (Mold Warriors :) have we really felt good about yet again walking away. We have enough money (which was earmarked for other items, sorry about that) to last about two weeks out of the house (and that is even with help from my mom). We feel strongly about the things that money was supposed to pay for BUT we feel even stronger that if staying here is adding more of a toxic load to our kids' bodies...no amount of budgeting/money is worth that.

I feel like a lot of the drama with this home has been a true test of WHERE our hearts are. It's really made us question a lot. We are seeing how easily it is to be attached to your stuff and not the 'stuff maker' :) It is easy to get caught back up in the drama of the sick house and forget the lil wee ones who are sitting in front of you while you have YET another discussion on what to do, or have to make just one more phone call about 'it' while they wait...Grrrrrrr! How easily distracted we are from the "Real Thing". So...in a way this new advice to leave is a blessing in disguise. We will be forced for the next two weeks to just leave this house and it's drama behind!

I am going to finish packing in the morning. Shove as many beach toys and art supplies as I can into the van. Go load up on bulk fruits n veggies at Sam's. Come grab my sleepy husband (it's his first day off tomorrow and he is on the night shift). Swing by Middleburg to grab my mom. And head outa town...


As I sit here and type and my home is finally cooling off..thank you fans and night time and God..I am reminded again how fortunate I am. There are many today, maybe in Japan.. in other places...that can not escape the Toxic world they are in or find comfort from the heat. Even on my worst day as a Mold Victim I am truly not so bad off am I? Though I have had many meltdowns this week as my kid's health and behavior continues to decline and I am overwhelmed with their care, I am still blessed to have so many tools (books, family & friends, Internet, inspectors..) at my fingertips. And I have a God who loves and adores my family. He KNOWS the way we should take and as He refines us we will hopefully shine like gold for Him. And in the shattered dreams we live out we will hopefully long more and more for a HOME that does not hurt us. Wheww. Amen and Amen. One day I will look at this and see clearly why we had to walk it out..until then I trust that my Hope Giver has a plan. And nothing, no amount of mold or formaldehyde or sickness can stop us from spreading His hope to the least of these....

These lyrics spoke to my heart this week:

We pray for blessings
We pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty
hand to ease our suffering
All the while, You hear each spoken need
Yet love us way too much to give us lesser things


‘Cause what if your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights
Are what it takes to know You’re near
What if trials of this life are Your mercies in disguise

We pray for wisdom
Your voice to hear
And we cry in anger when we cannot feel You near
We doubt Your goodness, we doubt Your love
As if every promise from Your Word is not enough
All the while, You hear each desperate plea
And long that we'd have faith to believe


‘Cause what if your blessings come through raindrops

What if Your healing comes through tears
What if a thousand sleepless nights
Are what it takes to know You’re near
And what if trials of this life are Your mercies in disguise

When friends betray us

When darkness seems to win
We know the pain reminds this
heart
That this is not, this is not our home,
It's not our home


‘Cause what if your blessings come through raindrops

What if Your healing comes through tears
And what if a thousand sleepless nights
Are what it takes to know You’re near
What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst this world can’t satisfy

And what if trials of this life
The rain, the storms, the hardest nights
Are your mercies in disguise


Thank you Jesus!!! Would covet your prayers for clarity...we need to know what we are to do when these two weeks are up....super grateful that you would remember us to the Father....because of mercy-----me.